Archives for posts with tag: dermatology

So the cream arrived yesterday and we have started treatment, as usual Seren is not happy about having cream applied.  But other than that early signs are promising.  We didn’t manage any photos at the start of treatment but these were taken a few days ago

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These don’t really give much of an idea of how sore her skin was at this point, and how awful her scalp smelt from the weeping sores on her head, but needless to say by this point we were all pretty desperate for some relief.

Pictures taken today, after 5 applications of Dr A’s cream and a bath (with soap!)

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We now have everything crossed that this continues.

So I could probably win an award for being the worlds worst blogger, both in terms of how I write and the frequency that I do it.

Anyway an update,  my initial surgery was in March and went well, except I got an infection in my jaw which needed further surgery in May.  Now everything is ok-ish, and I have an appointment with the oral reconstruction team in October, on the anniversary of my first appointment with the max-fac team.

My main reason for re-activating this blog though is to record Seren’s progress with a new treatment. When I last posted about her eczema someone message my with a link to this doctor in South Africa  Over the past few months I’ve kept coming back to his website an looking up information on him.  Like everything on the web, I’ve wondered is it some sort of scam, or a quack, but everything I’ve found has led me to think he is genuine and gets good results for children with eczema that isn’t responding well.  We were hoping to hold off on treatment until the half term holidays but Seren’s skin is again deteriorating with the onset of Autumn so we are starting tomorrow.  Contacting Dr Aron was scary, we are putting our faith in the hands of a man we have never met, but everything we have read suggests that he can help us, and the treatments he uses are all conventional medicines, just used in a slightly different way.

So watch this space and hopefully updates will be slightly more frequent over the coming weeks.

On the jaw front there is no news. The pain has settled down quite a lot, although I’m sure it is still growing, and now extends onto the tongue side of my jaw as well as the cheek side. I will chase the operation date after New Year and hopefully won’t have to wait too much longer.

The current major medical issue is Seren’s eczema, which is currently flaring up quite badly. it started when she was about 10 weeks old, and at 4 years and almost 6 months is showing no signs of leaving us.


This was taken earlier in the year but she currently is in a similar state. At the minute she is scratching her head so badly she is starting to lose her hair in patches.

It feels like we have tried everything to try and get on top of this, but every time it feels like we are making progress we end up back at square one. It is doubly frustrating that she has eczema as she is the one that I few myself until she was 13 months old, I have to tell myself that maybe if I hadn’t her issues would be worse.

As anyone who knows Seren will know she is a tough little girl, very outgoing and feisty, so when she is screaming at us in the middle of the night to make the itchy stop it breaks our hearts. I don’t know what the next treatment will be, if any, we keep being told that most children with eczema outgrow it by the time they are 7, so until then we might just have to continue with steroids and emolients. We try and keep positive but hte next three years could be a very long wait.